Intersitial Cystitis World Support Groups
Interstitial Cystitis is an often misunderstood illness with chronic pain affecting every aspect of your life. If you are newly diagnosed, or someone you love has been diagnosed with IC, then you know that the value of a good tight support system is one of the main things that will keep things together when everything else (failed treatments, flares, etc) falls apart. Below are the interstitial cystitis support groups worldwide excluding the United States.
AUSTRALIA – Australia IC & OAB Resource Center
Interstitial Cystitis Support Group
Mercy Hospital for Women
Melbourne, Victoria, Australia
Contact: Christine Murray
E-mail: CMurray@mercy.com.au
Interstitial Cystitis Support Group of Australia
Chairman: Alice Terry
P.O. Box 767, Kingswood
2747 New South Wales, Australia
E-mail: alicetlib@hotmail.com
www.users.bigpond.net.au/ICSG
BRAZIL
Interstitial Cystitis Patient Support
North East Brazil
c/o Ariel Scafuri, MD
Universidade Federal do Cear�¡
Rua Republica do Libano, 88 apto 200
Fortalexa, Cear�¡, Brazil 60160-140
tel: 55-8524239-99970367
ascafuri@uol.com.br
CANADA – Association de la Cystite Interstitielle du QuÃ?©bec
President : Fran�§oise Robert
14 Grand Coteau
Ste-Julie (Qu�©bec), JOL 2SO Canada
fax: 450-922-6498
frobert@videotron.ca
www.cystite-interstitielle.org
Prince George I.C. Support Group and Info.
Darleen O’Neill 250-962-7943, e-mail: doneill@sd57.bc.ca
Brenda Daly 250-964-0948
IC Support and Info. Group of Brantford
Helen Prince 519-752-2534
IC phone support only
Cornwall – Francine Brisson 613-936-2016
IC Support and Info. Group of London
Carol Shaw 519-474-1680
Marilyn Cousins 519-438-1500
IC Support and Info. Group of Ottawa
Inga Legere 613-839-6188, e-mail: ilegere2@hotmail.com
Anne Raina 613-733-5891
IC Support and Info. Group of Toronto
Mary Andrisani 905-850-0589
Please call for meeting information and IC phone support
CZECH REPUBLIC
c/o Dr Libor Zamecnik
Urologicka klinika
VFN a 1. LF UK
Ke Karlovu 6 128 08 Praha 2
E-mail: libor.zamecnik@lf1.cuni.cz
DENMARK – IC Foreningen
Chairman: Annette Rasmussen
Magleparken 142, st.v
2750 Ballerup
Phone: +45 44 97 04 38
Email chanti@worldonline.dk
INDIA
Dr. Nagendra Mishra
2nd Floor, Karnavati Hospital Building
Opp. Town Hall
Ellisbridge, Ahmedabad-380 006
India
E-mail: nagendraad1@sancharnet.in
JAPAN – IC Tomo no Ki
Mrs. Masako Katsurada
1459-56, Funaki-cho Oumihachiman
Shiga 523-0084
Japan
Phone: +81.748.338222
Fax: +81.748.338222
MEXICO – ACI
Website: http://www.aci-mexico.com
Asociaci�³n de Cistitis Intersticial M�©xico
Founder: Florentina Ferreyra Lopez
E-mail: flore@aci-mexico.com
tel: 52(55)5404-89-16
PR: Mayra Zamora Toscano
E-mail: may@aci-mexico.com
tel: 52(55)5468-72-45
Amatl�¡n No. 37-2,Col. Condesa, CP 06140
M�©xico, D.F.
NETHERLANDS: Interstiti�«le Cystitis Pati�«ntenvereniging (ICP)
Website: http://www.icpatienten.nl/
Chairmen: Joke Scholten JMAScholten@hetnet.nl
Lynne van Poelgeest M.L.van.Poelgeest@12move.nl
Hon.President: Jane Meijlink jane-m@dds.nl
Secretariat, Cypergrasweg 30,
1313 AL Almere, The Netherlands
info@icpatienten.nl
www.icpatienten.nl
NORWAY – Norge ICPA
Julia M. God�¸y
Langedalskleiva #4
Lillesand 4790
Norge
Tel. +47 37 27 41 77
E-mail: jegodoy@online.no
NEW ZEALAND – Interstitial Cystitis/Urology Support Group –
PO Box 33-264
Christchurch, New Zealand
Attn: Dot Milne, Group Leader
E-mail: weedot@xtra.co.nz
Phone: +64.3.3294005
PERU –
Fernando Leon MD
Urologist
431 Lord Nelson
Miraflores, Lima 18
Peru
E-mail – ferleon@terra.com.pe
PORTUGAL –
Paulo Dinis Oliveira MD
Department of Urology
Hospital S. Joao
4200 Porto
Portugal
E-mail – cruzfjmr@med.up.pt
hospital phone: +35 1225512100
SPAIN – A.M.A.T.Y.C.I.
Calle Sineu
2 Adosado C
07220 Pina ( Algaida )
Mallorca, Spain
Telefono: 971.66.53.22
E-Mail abatycipina@hotmail.com or abatycipina@terra.es
SWEDEN – ISOP
Website: http://home.swipnet.se/isop/ic.htm
UNITED KINGDOM – Interstitial Cystitis Support Group
Website: www.interstitialcystitis.co.uk
76 High Street
Stony Stratford
Buckinghamshire
MK11 1AH, England
Telephone/Fax: +44 (0)1908 569169
